Patient and Public Involvement 

Involvement of people with experience of living with dementia and/or caring for someone with dementia is a vital part of the NIHR Maudsley Dementia Biomedical Research Unit (BRU). It ensures our research is of the highest quality and reflects the needs and challenges of people affected by dementia today.

The Maudsley BRU service user and carer group, MALADY, provides invaluable experience-led insight and advice to our researchers in a range of ways:

  • Contributing to identifying research priorities
  • Meeting with individual researchers to improve study design and delivery
  • Providing advice and trouble-shooting for research studies underway in the BRU-D
  • Participating in working groups / focus groups as appropriate.
  • Participating in collaborative projects including development of funding bids.
  • Advising on the best ways to communicate about our research.

Our Patient and Public involvement (PPI) strategy explains our objectives in this area and outlines the steps that we are taking to achieve these objectives.

For more information about the MALADY group or our PPI strategy, please email BRU-D Manager Samantha Sharp at Samantha.sharp@kcl.ac.uk

 

About dementia research

About dementia research

What dementia research is, and why it is important.
Participate in dementia research

Take part in our dementia research

We conduct research trials every year with the aim of testing new treatments and approaches. Be a part of our research by registering your interest.
PROTECT Study

Healthy ageing research

Take part in research which aims to understand what happens to our brains as we age. Open to anyone in the UK aged over 50 without a dementia diagnosis.