Selected NIHR Maudsley BRC Patient & Public Involvement research publications

Consenting for contact? Linking electronic health records to a research register within psychosis services, a mixed method study. Robotham, D., Riches, S., Perdue, I., Callard, F., Craig, T., Rose, D. & Wykes, T. 14 May 2015 In : BMC HEALTH SERVICES RESEARCH. 15, 1, 199

Linking a research register to clinical records in older adults' mental health services: a mixed-methods study. Robotham, D., Evans, J., Watson, A., Perdue, I., Craig, T., Rose, D. & Wykes, T. 1 Apr 2015 In : Alzheimer's research & therapy. 7, 15

Electronic personal health records for people with severe mental illness; a feasibility study. Robotham, D., Mayhew, M., Rose, D. & Wykes, T. 2015 In : BMC Psychiatry. 15, 192

Staff and service users' views on a 'Consent for Contact' research register within psychosis services: a qualitative study. Papoulias, C., Robotham, D., Drake, G., Rose, D. & Wykes, T. 24 Dec 2014 In : BMC Psychiatry. 14, , 377

Collaborative development of an electronic Personal Health Record for people with severe and enduring mental health problems. Ennis, L., Robotham, D., Denis, M., Pandit, N., Newton, D., Rose, D. & Wykes, T. 18 Nov 2014 In : BMC Psychiatry. 14, 305

Selecting outcome measures in mental health: the views of service users. Crawford, M. J., Robotham, D., Thana, L., Patterson, S., Weaver, T., Barber, R., Wykes, T. & Rose, D. Aug 2011 In : Journal of Mental Health. 20, 4, p. 336 – 346

Close to the bench as well as at the bedside: involving service users in all phases of translational research. Callard, F., Rose, D. & Wykes, T. Dec 2012 In : Health Expectations. 15, 4, p. 389-400

Development and evaluation of a de-identification procedure for a case register sourced from mental health electronic records. Fernandes, A., Cloete, D., Broadbent, M., Hayes, R., Chang, C-K., Jackson, R., Roberts, A., Tsang, J., Soncul, M., Liebscher, J., Stewart, R. & Callard, F. 11 Jul 2013 In : BMC medical informatics and decision making. 13, 71

Rapid progress or lengthy process? electronic personal health records in mental health. Ennis, L., Rose, D., Callard, F., Denis, M. & Wykes, T. 26 Jul 2011 In : Bmc Psychiatry. 11, 117

Emerging consensus on measuring addiction recovery: Findings from a multi-stakeholder consultation exercise. Neale, J., Panebianco, D., Finch, E., Marsden, J., Mitcheson, L., Rose, D., Strang, J. & Wykes, T. 22 Oct 2015 In : Drugs: Education, Prevention and Policy.

"You're all going to hate the word 'recovery' by the end of this": Service users' views of measuring addiction recovery. Neale, J., Tompkins, C., Wheeler, C., Finch, E., Marsden, J., Mitcheson, L., Rose, D., Wykes, T. & Strang, J. 1 Jan 2015 In : Drugs: Education, Prevention and Policy. 22, 1, p. 26-34

Blending qualitative and quantitative research methods to optimize patient reported outcome measures (PROMs). Neale, J. & Strang, J. 2015 In : Addiction.
How should we measure addiction recovery? Analysis of service provider perspectives using online Delphi groups. Neale, J., Finch, E., Marsden, J., Mitcheson, L., Rose, D., Strang, J., Tompkins, C., Wheeler, C. & Wykes, T. 1 Jan 2014 In : Drugs: Education, Prevention and Policy. 21, 4, p. 310-323