Scope and development

Our PPI strategy outlines how the National Institute of Health Research (NIHR) Maudsley Biomedical Research Centre (BRC) approaches public involvement. We want to involve people in shaping the direction of our research and which infrastructure we need to develop. For the purposes of this document, the INVOLVE definition of public involvement in research will be used, which is: “research being carried out with or by members of the public rather than to, about, or for them.” We are not talking about public engagement, although elements of public engagement (and research participation) will cross over with some of our work, and are included where necessary. We believe that sometimes engagement can lead into involvement, since people often need to be aware of research before becoming involved.

Our strategy is the result of a number of discussions with other BRCs and has the support of the NIHR Central Commissioning Facility and INVOLVE. We also consulted with academics and clinicians within our BRC, and with service users and carers/supporters who have been involved with our BRC. We also completed a priority setting exercise with service users and carers/supporters to influence the future direction of research in our BRC; this exercise itself was run by service users and researchers. The Service User Research Enterpriseat King's College London oversaw the development of this strategy. We have written this document with reference to the ‘4PI’ framework, adhering to the Principles, Purpose, Presence, Process, and Impact (National Survivor User Network) of involvement activity on our BRC. We have highlighted where our activities adhere to this framework.