CRIS - Data Linkage Service User and Carer Advisory Group
This is a group of people with lived experienced of mental health problems who advise on data linkages projects with CRIS.
The Data Linkage Service User and Carer Advisory Group is a regular meeting of people with lived experience of mental health problems, all of whom have an interest in mental health research involving data linkage.
‘Data linkage’ means joining two or more independent databases that share a variable at an individual record level – for example, someone’s GP record and their hospital record will share a unique ‘NHS number’.
The group meets on a quarterly basis and researchers are invited to present their project, where they will receive feedback and advice from the group. If you are interested in becoming a member of the group and would like some further information, please contact Amelia Jewell (amelia.jewell@slam.nhs.uk).
How the Data Linkage Service User and Carer Advisory Group can support researchers
The Data Linkage Service User and Carer Advisory Group is open to researchers who are conducting data linkage projects using the Clinical Records Interactive Search (CRIS) system.
The group are happy to review projects at a variety of stages- from identifying research priorities and preparing grant applications, right through to disseminating findings. Using the Data Linkage Service User and Carer Advisory Group can help to promote the service user perspective in your mental health data linkage study, as well as improving the quality and relevance of your project. The group is also an example of Patient and Public Involvement (PPI), which can improve the rigour, quality and relevance of your research.
If you would like more information about the Data Linkage Service User and Carer Advisory Group or are interested in presenting at one of our meetings please contact Amelia Jewell (amelia.jewell@slam.nhs.uk).