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COVID-19 and Mental Health Studies Register

Exploring COVID-19 survivors’ views on their rehabilitation needs is an important, but as yet under researched area. Drawing parallels with other ICU survivors’ experiences seems appropriate as a starting point. However, the unique clinical features of COVID-19, the novel ways health and social care infrastructure has been remodelled, wider societal restrictions, and the perceived or actual risk that the patient has posed to others (family, friends, medical/care staff, community) may make this experience different. Only by considering the perspectives of those with first-hand experience of the disease can we fully understand the impact of COVID-19 related issues on rehabilitation success.

The aim of this 12 month qualitative study is to understand how people have been affected, both mentally and physically by living through the COVID-19 pandemic and to explore the support required to become well again. We will interview up to 25 people who have had COVID-19 and as a result have been critically ill once they have been discharged from hospitals to either Central London Community Health Care NHS Trust or to the NHS Seacole Centre in Surrey, part of Epsom & St Helier NHS Trust. Results will be used to support the decision-making of health and social care teams involved in long-term planning of those who need rehabilitation after they have been critically ill with COVID-19.

1. Baumgarten M, Poulsen I. Patients' experiences of being mechanically ventilated in an ICU: a qualitative meta-synthesis. Scandinavian Journal of Caring Sciences 2015; 29 (2): 205-214. https://doi.org/10.1111/scs.12177

2. Corner EJ, Murray EJ, Brett SJ. Qualitative, grounded theory exploration of patients’ experience of early mobilisation, rehabilitation and recovery after critical illness. BMJ Open 2019;9:e026348. doi:10.1136/ bmjopen-2018-026348 2. National Institute for Clinical Excellence (NICE).

3. Rehabilitation after critical illness in adults: Quality standard 158. Available from: nice.org.uk/guidance/qs158 2017

4. Faculty of Intensive Care medicine (FICM). FICM Position Statement and Provisional Guidance: Recovery and Rehabilitation for Patients Following the Pandemic. 2020. Available at: https://www.ficm.ac.uk/sites/default/files/ficm_rehab_provisional_guidance.pdf

Central London Community Healthcare Trust (Dr Matthew Hodson-Divisional director of nursing and Dr Gaby Parker-Clincial Psychologist)

NHS Seacole Centre, Epsom & St Helier NHS Trust (Dr Hilary Floyd-Medical Director and Sarah Langfield-Director of Nursing)